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Hi Sheila, sorry to hear you're still experiencing these problems 3 years on. It's been over three years since the surgery and I can finally say that the left side of my face is looking normal. In my case I lost all muscle tone on the left side of my face. Educate yourself as much as you can about HFS and the long and short term damage that can occur to the nerves/muscles involved. Luckily I found a "down to earth" nerosurgeon" at the University of Washington Medical Center, and I am currently seeing a very nice neurologist in Spokane for the pain that I am still experiencing. The majority of the neurologists that I have seen were very arrogant. If I would have had a doctor that thoroughly explained what caused hemifacial spasm and what the alternatives were, I would have went immediately for the sugery. In my case the twitching affected my trigeminal nerve, which after eight years of continuous twitching, I still have considerable pain. Ask questions like, "Is the medication that you are prescibing me going to cure the HFS, or will I eventually need microvascular decompression surgery?" My doctors were just giving me a "bandaid cure " something that would ease the pain and spasms, but ultimately it was the surgery that stopped the twitching. If the neurologist that you see diagnoses that you have HFS, be very proactive for yourself. Good luck and prayers.Īfter mulling over your situation overnight, and seeing some more of the replies, I agree with Roseann that you definitely need an MRI.

If the doctor would have said, "We can try medication, but there is obly an 8% chance that the medication will help," I would have requested that he refer me to a surgeon. For over eight years I lived with HFS and I wish that as soon as I was diagnosed that I would have been told straight up about the percentage that medication would control the spasms. The reality is, I gave up on all of the neurolofists in Spokane, because none of them were a specialist in microvascular decompression surgery. When I had HFS it was worse when I was tired or stressed, So, get as much rest as you can.

I also had two dosages of botox (didn't work). I'm not saying that they won't work for you. The neurologist diagnosed me with HFS and over the next 2-3 mobths prescibed several medications that didn't work.

After realizing that it was more that tense muscles he referred me to a neurologist. When I first started having the twitching in me face (left side) I went to my General Practitioner and he prescribed me muscle relaxers. I'm so sorry to hear that you are having all of these symptoms.